So, about that endoscopy... I was left with a whole lot of questions. First of all, the endoscopy was only scheduled on Monday, so Evan wasn't able to get off work and my mom was out of town. Thankfully, my grandparents helped out. So, my grandpa dropped my grandma and I off at the hospital. I check in and they tell me that they don't have me in their system. We are at the wrong hospital! My GI doctor works in a practice that is split between two hospitals and they do procedures at both hospitals. The receptionist had emailed me the wrong map/directions! I had checked the paperwork they gave me several times to make sure I had it right and we still ended up at the wrong hospital. Luckily, the other hospital was only a few miles away and my grandpa was able to turn around and get us. I was just laughing, because this is the kind of thing that happens to me. I told my grandma that my sister (Rachae) would really appreciate this, because we have the tendency to find ourselves in ridiculous situations. We got to the right hospital and checked in. I was so hungry. I hadn't been able to eat in about 40 hours! They finally called me back and got my iv started. The doctor came in and I asked him about my lab results from the blood draws done last week. He sent his nurse to find the results right then. There were a few weird things about this. 1. All my antibodies were normal. I told the doctor that I was happy about this, because Graesen's IgA is low and maybe it wasn't genetic. I was told by Graesen's GI doctor that he would most likely grow out of it if it wasn't genetic. My doctor shook his head "no!" I am going to have a lot of questions to ask both him and Graesen's doctor now. 2. The lab didn't send out one of my tests. The doctor didn't want to make me start eating wheat again (eating wheat right now causes me a lot of pain), so he ordered 2 tests for celiac disease. The first test is cheaper, but probably would give us a negative no matter what (you have to be eating wheat to get accurate results). The second test is very expensive, but tests to see if you have the genetic marker for celiac disease. The lab didn't listen to the doctor. They decided that since the first test was negative, they just wouldn't send out the second. The doctor was not happy! My blood has since been shipped to the lab for the second test. 3. My blood work said that I have ulcerative colitis. However, when the doctor examined me I had no signs of it at all. If I had it I should have had scarring, and I don't. Another weird thing is that I mentioned to the doctor that fact that many people in our family have stomach issues of some sort. He asked me if we knew what caused them and we don't. He then started asking me if anyone in our family gets migraines or has neck pain (yes and yes) and looked very concerned/interested by my response. I have no idea where he was going with that, because I don't really remember anything else (other than the nurse thinking I was 19 and being very surprised I have a 2 year old-until she looked at my chart). Once I got the anesthesia I was out. It is supposed to be a conscious sedation. I'm not sure what part of it was conscious! While in there the doctor found that I have some inflammation in my esophagus (just like Graesen did) due to mild reflux. This, however, is not what is causing my pain. He also found 3 polyps! What!?! I thought since I was young and healthy that I wouldn't have any, but apparently genetics play a large roll in whether you get them or not. I won't know for at least a week if they are the harmless kind or the pre-cancerous kind. This kind of stresses me out, but the nurses and doctor were very hopeful. They said that it is really a miracle that we caught them this young. If I had not been having pain, I would not have been checked until I was 50 or had some major problems. They said that polyps that are precancerous are very slow growing and take several years to turn into cancer. If they hadn't been removed now I could have been at risk for some scary stuff in my future. The nurse said that she wishes more people had the opportunity to be checked at my age. If they are the harmless kind I will just have to be checked every 10 years starting now. If they are the pre-cancerous kind I will have to be checked every 3 years to have any polyps that show up removed quickly. The polyps, however, would not cause the pain I have been having. Everything else looked super healthy from what he could see. The doctor said he is really baffled by me (it is just like me to confuse a doctor) and so he took tons of biopsies (way more than the normal amount) to see if he can figure this out. He said that if the biopsies all come back clear we will start testing for really rare stuff. He really believes that there is a problem, but at this point he really does not know what it is. So now I wait for results and worry, because that's what I do.
Today I took Graesen to the bouncy house place. We had 2 more visits left on our pass (they have to be used by the 17th). The place was packed, because there was no school today. I watched Graesen like a hawk, because I was worried that he would get too close to some of the older kids who were playing kind of rough. There was a day care there, plus many families and those older kids were wild. Graesen held his own, of course, and had a lot of fun.
Also, today I set up Graesen's booster seat. He hasn't been wanting to sit in his high chair lately, because he wants to sit at the grown up table. He loves his new seat :)
0 comments:
Post a Comment